How to deal with a seasonal depression?

The festive season ought to be festive, right? All in the non-stop joy and laughter culminating on the New Year's Eve. The cold, short, dark, and gloomy days can be particularly hard for those bereaved or others having some mobility issues. The ice and snow make it especially challenging. I noticed it myself, that due … Continue reading How to deal with a seasonal depression?

Trying to raise awareness

Raising awareness is not an easy task. Particularly of brain tumours, which are very complex, difficult to treat and not considered a sexy topic. This November, I set myself a goal to get some attention to this often overlooked topic. 28th October to 4th November was the International Brain Tumour Awareness Week. I did my … Continue reading Trying to raise awareness

You are dust, and to dust you shall return

I've come across an interesting Japanese wisdom: during your lifetime, each and everyone of us is assigned a specific amount of food we can eat. And when we reach our number, we die. Recently, I've encountered a similar saying but regarding breath. Everybody has their number of inhales and exhales they take during their life. … Continue reading You are dust, and to dust you shall return

How am I now?

This whole website is about me and my journey, so I feel a bit weird writing this. But people ask often about my current state. I have written about different issues I face and approaches I took but not an overall summary. So here it is: I was diagnosed January 2013. Undergone alternative stem cell … Continue reading How am I now?

Who controls our access to information?

Disclaimer: READ THIS FIRST, PLEASE, BEFORE YOU CALL ME A CONSPIRACY THEORIST Last week, Youtube removed video (picture below) Andrew did and posted three years ago. It was an interview with a doctor and scientist about DCA (Dichloroacetate) and its complimentary use in treating cancer. I'm taking DCA myself. It's made in the EU and … Continue reading Who controls our access to information?

Finding the small joys

Two days ago, I had an early morning call with Andrew. He mentioned that a person who we both knew, (also had a brain tumour) passed away. When he told me, a single song popped up on my mind. When we finished the video call, I played the tune loud on the radio. As it … Continue reading Finding the small joys

The good and the bad about Botox

In 2017, I wrote about how regular botox injections improved some of my symptoms. Diminished the movement on my chin and opened up my right eye. Altogether, I had botox for four years every three months, so at least 14 applications. Last injection was the end of June, 2020. Following the VP shunt operation, my … Continue reading The good and the bad about Botox

International Brain Tumour Conference 2023

A few weeks ago, I attended a conference organised by the International Brain Tumor Alliance (IBTA). It took place in Vienna over the course of three days. I encountered a few familiar faces, including former colleague and established new connections and friendships. It was a great opportunity to see what everyone else is doing, globally, … Continue reading International Brain Tumour Conference 2023

Power of neuroplasticity

When I first started having problems with my right hand while brushing teeth I thought: gosh, I'll never be able to switch to my left hand. Now, more than three years later, I not only brush my teeth with my left hand, I learnt to write with it also. Something I thought was impossible. This … Continue reading Power of neuroplasticity

Healed, but not cured

For way over these 10 years, living with my brain tumour, I have encountered "the war rhetoric", the victim mentality, power of prayer, miracle treatments, ... The list just goes on. (I have expressed my views on the words like "battle", "war", "fight", defeat", "warrior", "loosing a battle" and so on HERE. People talk about … Continue reading Healed, but not cured