Dating with a broken heart (and a brain tumour)

Valentine's Day can be hard for those who are single, widowed, broken-hearted, cheated on, rejected, ... basically it can be hard for us all. I often think how dating and making new friends can be challenging for young people with brain tumours. SPOILER ALERT: it is extremely difficult! I can explain why: from certain age, … Continue reading Dating with a broken heart (and a brain tumour)

Talking at Onco Conference

I was invited to talk at an Oncology Conference last week. The event took place in Prague. It was a perfect opportunity to present a patient organisation called BrainCzech, that I co-funded with my good friend H. H. is a doctor, who lost his sister to a brain tumour. This experience, among others, inspired him … Continue reading Talking at Onco Conference

Unbearable lightness of time

Christmas and New Years Evening have become this hope and love filled marketing bullshit and they were particularly difficult for me this past season. It daunted on me that it is exactly 10 years since all this started and I realised the baby I aborted would be 7 this year. Many different lives I could've … Continue reading Unbearable lightness of time

How to change your body and mind

Did you know your body, basically, changes completely? Fully. Physically. More or less every 10 years. Don't believe me? You can read & listen more here: or HERE and HERE HERE ... ❤

On brain tumours with Andrew Scarborough

I first met Andrew in 2019. He is a bit of a celebrity in the brain tumour community (whatever that means). He is also one of the closest people in my life, great individual and irreplaceable friend. He has been through a lot of tough times (like myself) and tries to make the best out … Continue reading On brain tumours with Andrew Scarborough

Why have national media platforms ignored my story?

My former work, Brain Tumour Research, has recently updated my story. You can read the full length here. People at the charity were heartbroken and said they wanted to go national with the story as it was strong, turbulent and impactful. I thought if it could raise awareness, perfect and I agreed to proceed. When … Continue reading Why have national media platforms ignored my story?

The uncomfortable truth

Some people might be wondering how I manage to live so long. Only around 20% of brain tumour patients live beyond the five-year threshold. True, I have outlived my prognosis. But what is the secret? I can talk about the different treatments. Write about the food I eat. Supplements I take. Exercises I do. Life … Continue reading The uncomfortable truth

A reason to stop worrying

Just a very brief post today. I have stumbled upon this video by accident but it very well sums up my outlook on life. I have written about my "philosophy" here. But the video uses a few other words and fancy graphic. So do watch and feel free to let me know whether you dis/agree. … Continue reading A reason to stop worrying

The difficult bits

I mainly write about positive stuff or at least topics with a positive twist. I generally try to stay optimistic, despite the obstacles, and search for the silver lining. Hence it took me sometime to figure out the best way to communicate an issue I have been dealing with. I will, first, describe the problem … Continue reading The difficult bits