There has been a lot of of "exciting" news about the latest research, drugs ... However, if you start to dig deeper, you'll often find that these are things that were introduced years ago. Frequently, what brings them back into the spotlight are lawsuits (Optune) or rights acquired by a pharmaceutical company (Vorasidenib and Servier). … Continue reading Excitement around new treatments for brain tumours is understandable — BUT …
My diagnosis
Neuro-oncology conference report
Introduction I attended the 2025 EANO (European Association of Neuro-Oncology) conference in Prague as a patient advocate and a member of the newly established Brain Tumour Advocacy Committee. Walking into the venue, I carried not only curiosity about the latest science, but also the lived urgency of patients navigating treatment, uncertainty, and quality of life. This … Continue reading Neuro-oncology conference report
Optune a glioblastom: Pochopení nadějí i limitů
Optune, zařízení na léčbu agresivního nádoru mozku (glioblastomu), je nyní hrazeno pojišťovnami, ale pouze některým pacientům. Účastnila jsem se konference EANO, která se právě konala zde v Praze. Reportáž z celé konference brzy zveřejním. Nejprve bych ale ráda stručně zmínila zařízení Optune, které je od začátku října 2025 nabízeno některým pacientům s glioblastomem a hrazeno pojišťovnami … Continue reading Optune a glioblastom: Pochopení nadějí i limitů
Ask me anything (about brain tumours)
There is that time of the year again, when inspiration to write new articles is running low. Luckily, there are two big events happening this Autumn, and with people still following my work, this keeps me motivated to come up with new topics. Yesterday, I asked on social media, what scientific questions people have regarding … Continue reading Ask me anything (about brain tumours)
From Despair to Hope? What I Found Out About Brain Tumour Vaccines
In my last article, where I criticised vaccines, I promised to write about vaccines for brain tumours. Researching this topic seriously took me down memory lane - to a time of hopeless investigations into my few options. Much of this analysis often done by family members, often leading to countless arguments. There was a desperate … Continue reading From Despair to Hope? What I Found Out About Brain Tumour Vaccines
When you are stuck, tired, sad or lonely
I find myself in a bit of a limbo at the moment—in between projects. My health is stable right now, but I’m grasping for motivation. You see, even though you’re lucky to be alive, when you live with this condition throughout your entire adulthood, it inevitably affects every part of your existence. You know I’m not into self-pity or … Continue reading When you are stuck, tired, sad or lonely
Trust, Lies, and Health Scams: A Cautionary Tale?
Have you watched Apple Cider Vinegar? A number of people encouraged me to watch it, so I did. And here is my honest review. Apple Cider Vinegar is inspired by a true story of Belle Gibson, an Australian who claimed to have a brain cancer. She stated to have cured her disease by natural remedies, … Continue reading Trust, Lies, and Health Scams: A Cautionary Tale?
How to make brain (tumours) sexy?
Being actively involved in the international oncology sphere, I often ask myself this rhetorical question. How do we make brain (tumours) "sexy"? Let me explain what I mean. We live in a highly visual, superficial world, constantly craving quick and easy solutions. Unfortunately, oncology is no exception. Not to mention, a role of marketing, which … Continue reading How to make brain (tumours) sexy?
A Christmas miracle?
We usually take certain things in our lives for granted. Right until they are gone or taken away. Then we often miss them and wish that they'd return. In my case, it was walking. Ever since my balance and coordination worsened, and I eventually had to start using a wheelchair, I truly missed walking. I … Continue reading A Christmas miracle?
Is positivity without empathy fake/hollow?
Someone recently raised the point that positivity without genuine understanding can feel fake. This has deeply resonated with me and I'm going to tell you why. I feel there is often this disconnect between those who have gone through a serious disease and the "healthy ones". This miscommunication is two-fold: Firstly, a big chunk of … Continue reading Is positivity without empathy fake/hollow?
Anna's Brainstorm 