Founding a brain tumour organisation

I have been extremely lucky. Since opening up about the tumour, I worked with others affected by the disease and was able to become part of a community. In the UK, there are many charities helping the cause and bringing people together. Since returning to the Czech Republic, I've been missing such a group. We … Continue reading Founding a brain tumour organisation

Why I am not fighting with my cancer

There are people who name their tumour, those who keep their radiotherapy masks and beat their cancers. I am not one of them and I will tell you why. First of all, I don't name my tumour. I'd never judge those who do but I simply cannot. There just ain't the right name that would … Continue reading Why I am not fighting with my cancer

Why I no longer do keto?

I don't like the word DIET. I have never been on any to loose weight and I'm not planning to do so. However, I did try a number of different things to control the diagnosis. Long story short, I came across keto, and started doing it properly in January 2019. I significantly reduced carbs, cut … Continue reading Why I no longer do keto?

My most read articles

The year is coming to an end and I thought of compiling a list of my top visited posts. Some make sense, others not so much. Find out for yourself: 1. Finding the courage It's my very first article about the brain tumour and even after all these years, I don't think it's embarrassing ... … Continue reading My most read articles

Why is having an abortion one of the best decisions I’ve made?

For some time I wasn't sure whether I should write this article. Some might think it isn't linked to my diagnosis and is private. But events in Poland and southern U.S. make my blood boil hence I decided to share my story. It was 2015, I just finished my university degree. My period was late … Continue reading Why is having an abortion one of the best decisions I’ve made?

Why am I doing this? / Proč?

So I have recently been on Czech national news, twice, talking about brain tumours. You can enjoy the longer version here: https://www.ceskatelevize.cz/porady/10101491767-studio-ct24/221411058031109/ Starts from 8:00 Some people might ask why I am doing this. Do I want to become famous? (hahaha) Last Summer (2020), I almost died. In other words, the radiotherapy would kill me … Continue reading Why am I doing this? / Proč?

Optimist/pessimist: why does it matter?

There are two types of people. Those who pee while having a shower and those who lie about it. Equally, there are two types of outlook on life. One that sees life as a great miracle, obstacles as a way to learn and to find new paths. And then those who think we are all … Continue reading Optimist/pessimist: why does it matter?

It’s just a ponytail…

Disclaimer: I didn't find it horrible when I was losing hair during radiotherapy. Equally, I wasn't particularly bothered when a nurse shaved my head before the surgery. BUT Today, I put hair in a ponytail. First time in more than a year. It was quite emotional not because the bloody hair won't finally fall into … Continue reading It’s just a ponytail…

Things you should say to a brain tumour patient

Due to a popular demand: What tumour do you have and what part of your brain?When were you diagnosed?Where were you diagnosed?What symptoms, side effects do you experience?Did it change your view on religion?What should people talk about more?What can you do?What would be the best way to help you?What has changed?What was the toughest … Continue reading Things you should say to a brain tumour patient