Due to a popular demand: What tumour do you have and what part of your brain?When were you diagnosed?Where were you diagnosed?What symptoms, side effects do you experience?Did it change your view on religion?What should people talk about more?What can you do?What would be the best way to help you?What has changed?What was the toughest … Continue reading Things you should say to a brain tumour patient
My diagnosis
Things you shouldn’t say to a brain tumour patient
I do realise that everyone is different and what might bother me could be fine with you and vice versa. Hence, this is my list. The best strategy is to effectively communicate and ask what would the person like. There is never anything wrong with asking. Ohhhh brain cancer, that's a horrible thing to have. … Continue reading Things you shouldn’t say to a brain tumour patient
Supplements
I take these daily: Great hormone. Helps me to sleep. https://www.cancer.gov/publications/dictionaries/cancer-drug/def/sodium-dichloroacetate The DCA has a few side effects so I'm supplementing with vitamin B. More vitamins B. And finally... If I know that I will eat rubbish on a particular day.
Život na vozejku – nová episoda
https://www.youtube.com/embed/vDp-tvP1Wsc Podcast v Češtině. Anna mluví se svou rodinou o životě s postižením, a o tom, co se může zlepšit.
Problem walking
The radiotherapy worsened my walking. I could see the change from week one. First few days, I walked to the hospital by myself. By week seven, my balance was affected, I was very weak, especially on the right hand-side, and had to rely on patient transport. Some people claim that I should have started exercising … Continue reading Problem walking
After the emergency surgery
After I had the shunt surgery, many things changed for the better. I no longer had the facial spasm but my face dropped like after a stroke. I had some difficulty swallowing as a result of that. I even choked once and we called an ambulance. Thank god, my brother knew how to perform first … Continue reading After the emergency surgery
Emergency shunt
After the radiotherapy, hydrocephalus developed and I suffered from symptoms without knowing. Such as headaches, nausea, worsened balance and general confusion. This lasted for a few weeks and instead of happily returning to the UK, I stayed in Czech for a bit longer. The situation worsened and I had emergency shunt surgery. It was pretty … Continue reading Emergency shunt
Declining chemotherapy
After radiotherapy, I was very weak. My oncologist recommended chemo even though the tumour came back as not responsive to chemotherapy. When I asked why, I was told that they still have better results even when the tumour is not chemo-sensitive. Strange ... what was the point of biopsy if all patients are then treated … Continue reading Declining chemotherapy
Life, weddings, racism
https://www.youtube.com/embed/wkiJvjJ6orE Anna talks to her good friends, Farel and Elise, about marriage, engagement, pregnancy, allergies and racism.
Positivity
Next episode... https://www.youtube.com/embed/ezz6st13Ct0
Anna's Brainstorm 