My diagnosis

Things you shouldn’t say to a brain tumour patient

/ annasbrainstorm / 5 Comments

I do realise that everyone is different and what might bother me could be fine with you and vice versa. Hence, this is my list. The best strategy is to effectively communicate and ask what would the person like. There is never anything wrong with asking. Ohhhh brain cancer, that's a horrible thing to have. … Continue reading Things you shouldn’t say to a brain tumour patient

Supplements

/ annasbrainstorm / 3 Comments

I take these daily: Great hormone. Helps me to sleep. https://www.cancer.gov/publications/dictionaries/cancer-drug/def/sodium-dichloroacetate The DCA has a few side effects so I'm supplementing with vitamin B. More vitamins B. And finally... If I know that I will eat rubbish on a particular day.

Problem walking

/ annasbrainstorm / 2 Comments

The radiotherapy worsened my walking. I could see the change from week one. First few days, I walked to the hospital by myself. By week seven, my balance was affected, I was very weak, especially on the right hand-side, and had to rely on patient transport. Some people claim that I should have started exercising … Continue reading Problem walking

After the emergency surgery

/ annasbrainstorm / Leave a comment

After I had the shunt surgery, many things changed for the better. I no longer had the facial spasm but my face dropped like after a stroke. I had some difficulty swallowing as a result of that. I even choked once and we called an ambulance. Thank god, my brother knew how to perform first … Continue reading After the emergency surgery

Emergency shunt

/ annasbrainstorm / 1 Comment

After the radiotherapy, hydrocephalus developed and I suffered from symptoms without knowing. Such as headaches, nausea, worsened balance and general confusion. This lasted for a few weeks and instead of happily returning to the UK, I stayed in Czech for a bit longer. The situation worsened and I had emergency shunt surgery. It was pretty … Continue reading Emergency shunt

Declining chemotherapy

/ annasbrainstorm / 3 Comments

After radiotherapy, I was very weak. My oncologist recommended chemo even though the tumour came back as not responsive to chemotherapy. When I asked why, I was told that they still have better results even when the tumour is not chemo-sensitive. Strange ... what was the point of biopsy if all patients are then treated … Continue reading Declining chemotherapy

New podcast

/ annasbrainstorm / 2 Comments

https://www.youtube.com/embed/VNZUa_0K7sc We started new podcast. First episode in English. Two siblings. One with a brain tumour, and background in psychology and meditation. Second with a degree in physiotherapy and interest in exercise and nutrition. Together talking about what separates and connects them. First podcast introducing the two and explaining their reason behind starting Braincast.