There has been a lot of of "exciting" news about the latest research, drugs ... However, if you start to dig deeper, you'll often find that these are things that were introduced years ago. Frequently, what brings them back into the spotlight are lawsuits (Optune) or rights acquired by a pharmaceutical company (Vorasidenib and Servier). … Continue reading Excitement around new treatments for brain tumours is understandable — BUT …
brain tumour
Neuro-oncology conference report
Introduction I attended the 2025 EANO (European Association of Neuro-Oncology) conference in Prague as a patient advocate and a member of the newly established Brain Tumour Advocacy Committee. Walking into the venue, I carried not only curiosity about the latest science, but also the lived urgency of patients navigating treatment, uncertainty, and quality of life. This … Continue reading Neuro-oncology conference report
Optune a glioblastom: Pochopení nadějí i limitů
Optune, zařízení na léčbu agresivního nádoru mozku (glioblastomu), je nyní hrazeno pojišťovnami, ale pouze některým pacientům. Účastnila jsem se konference EANO, která se právě konala zde v Praze. Reportáž z celé konference brzy zveřejním. Nejprve bych ale ráda stručně zmínila zařízení Optune, které je od začátku října 2025 nabízeno některým pacientům s glioblastomem a hrazeno pojišťovnami … Continue reading Optune a glioblastom: Pochopení nadějí i limitů
Ask me anything (about brain tumours)
There is that time of the year again, when inspiration to write new articles is running low. Luckily, there are two big events happening this Autumn, and with people still following my work, this keeps me motivated to come up with new topics. Yesterday, I asked on social media, what scientific questions people have regarding … Continue reading Ask me anything (about brain tumours)
From Despair to Hope? What I Found Out About Brain Tumour Vaccines
In my last article, where I criticised vaccines, I promised to write about vaccines for brain tumours. Researching this topic seriously took me down memory lane - to a time of hopeless investigations into my few options. Much of this analysis often done by family members, often leading to countless arguments. There was a desperate … Continue reading From Despair to Hope? What I Found Out About Brain Tumour Vaccines
I Am Not Anti-Vaccine, But…
They often say that something is a conspiracy until it isn't. I'd like to think of myself as an open-minded person, willing to challenge my knowledge, accept new information and potentially change my existing views. I try not to fall victim to my own cognitive biases. Researching the topic of vaccines, then, was a real … Continue reading I Am Not Anti-Vaccine, But…
When you are stuck, tired, sad or lonely
I find myself in a bit of a limbo at the moment—in between projects. My health is stable right now, but I’m grasping for motivation. You see, even though you’re lucky to be alive, when you live with this condition throughout your entire adulthood, it inevitably affects every part of your existence. You know I’m not into self-pity or … Continue reading When you are stuck, tired, sad or lonely
Managing pain without popping pills?
Life can be painful. Sometimes, existence itself feels painful. Those of us living with a serious condition know this all too well. From an early age, we’re taught that any kind of ache is bad, so we instinctively try to avoid it or eliminate it as soon as it appears. But I’ve discovered a different … Continue reading Managing pain without popping pills?
Trust, Lies, and Health Scams: A Cautionary Tale?
Have you watched Apple Cider Vinegar? A number of people encouraged me to watch it, so I did. And here is my honest review. Apple Cider Vinegar is inspired by a true story of Belle Gibson, an Australian who claimed to have a brain cancer. She stated to have cured her disease by natural remedies, … Continue reading Trust, Lies, and Health Scams: A Cautionary Tale?
How to make brain (tumours) sexy?
Being actively involved in the international oncology sphere, I often ask myself this rhetorical question. How do we make brain (tumours) "sexy"? Let me explain what I mean. We live in a highly visual, superficial world, constantly craving quick and easy solutions. Unfortunately, oncology is no exception. Not to mention, a role of marketing, which … Continue reading How to make brain (tumours) sexy?
Anna's Brainstorm 