There has been a lot of of "exciting" news about the latest research, drugs ... However, if you start to dig deeper, you'll often find that these are things that were introduced years ago. Frequently, what brings them back into the spotlight are lawsuits (Optune) or rights acquired by a pharmaceutical company (Vorasidenib and Servier). … Continue reading Excitement around new treatments for brain tumours is understandable — BUT …
Cancer
Neuro-oncology conference report
Introduction I attended the 2025 EANO (European Association of Neuro-Oncology) conference in Prague as a patient advocate and a member of the newly established Brain Tumour Advocacy Committee. Walking into the venue, I carried not only curiosity about the latest science, but also the lived urgency of patients navigating treatment, uncertainty, and quality of life. This … Continue reading Neuro-oncology conference report
From Despair to Hope? What I Found Out About Brain Tumour Vaccines
In my last article, where I criticised vaccines, I promised to write about vaccines for brain tumours. Researching this topic seriously took me down memory lane - to a time of hopeless investigations into my few options. Much of this analysis often done by family members, often leading to countless arguments. There was a desperate … Continue reading From Despair to Hope? What I Found Out About Brain Tumour Vaccines
When you are stuck, tired, sad or lonely
I find myself in a bit of a limbo at the moment—in between projects. My health is stable right now, but I’m grasping for motivation. You see, even though you’re lucky to be alive, when you live with this condition throughout your entire adulthood, it inevitably affects every part of your existence. You know I’m not into self-pity or … Continue reading When you are stuck, tired, sad or lonely
Trust, Lies, and Health Scams: A Cautionary Tale?
Have you watched Apple Cider Vinegar? A number of people encouraged me to watch it, so I did. And here is my honest review. Apple Cider Vinegar is inspired by a true story of Belle Gibson, an Australian who claimed to have a brain cancer. She stated to have cured her disease by natural remedies, … Continue reading Trust, Lies, and Health Scams: A Cautionary Tale?
How to make brain (tumours) sexy?
Being actively involved in the international oncology sphere, I often ask myself this rhetorical question. How do we make brain (tumours) "sexy"? Let me explain what I mean. We live in a highly visual, superficial world, constantly craving quick and easy solutions. Unfortunately, oncology is no exception. Not to mention, a role of marketing, which … Continue reading How to make brain (tumours) sexy?
Is positivity without empathy fake/hollow?
Someone recently raised the point that positivity without genuine understanding can feel fake. This has deeply resonated with me and I'm going to tell you why. I feel there is often this disconnect between those who have gone through a serious disease and the "healthy ones". This miscommunication is two-fold: Firstly, a big chunk of … Continue reading Is positivity without empathy fake/hollow?
The latest advances in treatments, clinical trials … for brain tumours
My close friend, Andrew, who I interviewed, for example, HERE, has recently been invited to the British Neuro-Oncology Society (BNOS) conference. Seems like it was a very informative event. He was kind enough to answer a couple of questions I had and that I thought could be relevant for all brain tumour patients. Below is … Continue reading The latest advances in treatments, clinical trials … for brain tumours
9 key factors of a long-term cancer survival
Since entering this VIP oncology universe, I've come across the "cures" and "guaranteed routes to follow" and "people who have all the answers". Most would ring the alarm bell, raise all the red flags and make me even more skeptical. I am a very pragmatic person. One who questions both the mainstream and alternative treatments. … Continue reading 9 key factors of a long-term cancer survival
Can you ever know enough?
Short answer is NO. A slightly more long-winded response is: Claiming that you know it all and have all the solutions is arrogant, ignorant, pig-headed, narrow-minded and, to be frank, makes me skeptical. You can be a renowned expert in your field. However, if you are unwilling to keep evolving or being able to admit … Continue reading Can you ever know enough?
Anna's Brainstorm 