Optune, zařízení na léčbu agresivního nádoru mozku (glioblastomu), je nyní hrazeno pojišťovnami, ale pouze některým pacientům. Účastnila jsem se konference EANO, která se právě konala zde v Praze. Reportáž z celé konference brzy zveřejním. Nejprve bych ale ráda stručně zmínila zařízení Optune, které je od začátku října 2025 nabízeno některým pacientům s glioblastomem a hrazeno pojišťovnami … Continue reading Optune a glioblastom: Pochopení nadějí i limitů
diagnosis
Ask me anything (about brain tumours)
There is that time of the year again, when inspiration to write new articles is running low. Luckily, there are two big events happening this Autumn, and with people still following my work, this keeps me motivated to come up with new topics. Yesterday, I asked on social media, what scientific questions people have regarding … Continue reading Ask me anything (about brain tumours)
I Am Not Anti-Vaccine, But…
They often say that something is a conspiracy until it isn't. I'd like to think of myself as an open-minded person, willing to challenge my knowledge, accept new information and potentially change my existing views. I try not to fall victim to my own cognitive biases. Researching the topic of vaccines, then, was a real … Continue reading I Am Not Anti-Vaccine, But…
When you are stuck, tired, sad or lonely
I find myself in a bit of a limbo at the moment—in between projects. My health is stable right now, but I’m grasping for motivation. You see, even though you’re lucky to be alive, when you live with this condition throughout your entire adulthood, it inevitably affects every part of your existence. You know I’m not into self-pity or … Continue reading When you are stuck, tired, sad or lonely
Managing pain without popping pills?
Life can be painful. Sometimes, existence itself feels painful. Those of us living with a serious condition know this all too well. From an early age, we’re taught that any kind of ache is bad, so we instinctively try to avoid it or eliminate it as soon as it appears. But I’ve discovered a different … Continue reading Managing pain without popping pills?
Trust, Lies, and Health Scams: A Cautionary Tale?
Have you watched Apple Cider Vinegar? A number of people encouraged me to watch it, so I did. And here is my honest review. Apple Cider Vinegar is inspired by a true story of Belle Gibson, an Australian who claimed to have a brain cancer. She stated to have cured her disease by natural remedies, … Continue reading Trust, Lies, and Health Scams: A Cautionary Tale?
How to make brain (tumours) sexy?
Being actively involved in the international oncology sphere, I often ask myself this rhetorical question. How do we make brain (tumours) "sexy"? Let me explain what I mean. We live in a highly visual, superficial world, constantly craving quick and easy solutions. Unfortunately, oncology is no exception. Not to mention, a role of marketing, which … Continue reading How to make brain (tumours) sexy?
The latest advances in treatments, clinical trials … for brain tumours
My close friend, Andrew, who I interviewed, for example, HERE, has recently been invited to the British Neuro-Oncology Society (BNOS) conference. Seems like it was a very informative event. He was kind enough to answer a couple of questions I had and that I thought could be relevant for all brain tumour patients. Below is … Continue reading The latest advances in treatments, clinical trials … for brain tumours
9 key factors of a long-term cancer survival
Since entering this VIP oncology universe, I've come across the "cures" and "guaranteed routes to follow" and "people who have all the answers". Most would ring the alarm bell, raise all the red flags and make me even more skeptical. I am a very pragmatic person. One who questions both the mainstream and alternative treatments. … Continue reading 9 key factors of a long-term cancer survival
Gift of a brain tumour
Not everyone would call their cancer/tumour a gift. I suppose it's within one's approach to a disease; some fight it, while others live with it. I wrote about this quite extensively. How I'm grateful for my tumour and dislike the war rhetoric used in oncology. While reading The Myth of Normal, I came across Will … Continue reading Gift of a brain tumour