This whole website is about me and my journey, so I feel a bit weird writing this. But people ask often about my current state. I have written about different issues I face and approaches I took but not an overall summary. So here it is: I was diagnosed January 2013. Undergone alternative stem cell … Continue reading How am I now?
radiotherapy
Honest opinion on the COVID pandemic
I have been thinking how best to write about my thoughts but it seems the topic is still very divisive and I will never be 100% satisfied with my work. So any comments, I am very happy to hear them. Let me tell you a story. I first heard about Wuhan end of November, 2019. … Continue reading Honest opinion on the COVID pandemic
It’s just a ponytail…
Disclaimer: I didn't find it horrible when I was losing hair during radiotherapy. Equally, I wasn't particularly bothered when a nurse shaved my head before the surgery. BUT Today, I put hair in a ponytail. First time in more than a year. It was quite emotional not because the bloody hair won't finally fall into … Continue reading It’s just a ponytail…
Treatment
As I mentioned in my previous post, the biopsy showed that I had a grade III astrocytoma so I was recommended radiotherapy followed by temozolomide. Before I started 36 doses in April 2020, I had a CT scan and had my radiotherapy mask fitted. I was definitely getting weaker and by week three I started … Continue reading Treatment
How far can doctors go and who is ultimately making decisions?
An interesting thing happened at my consultation yesterday following my recent MRI scan. The consultant neurosurgeon and the Neuro-oncology Specialist Nurse had these martyred expressions on their faces. They said that my recent scan hasn’t shown significant change but they discussed my case at their MDT meeting and they believe that I should have a … Continue reading How far can doctors go and who is ultimately making decisions?
Being at a crossroads
You know that feeling when you have to make an important decision in your life or make a change and you are just really confused and don’t know what to do? That’s exactly where I am right now, and it sucks. The question that I get quite often is whether I’ve undergone any treatments. My … Continue reading Being at a crossroads
Anna's Brainstorm 