This whole website is about me and my journey, so I feel a bit weird writing this. But people ask often about my current state. I have written about different issues I face and approaches I took but not an overall summary. So here it is: I was diagnosed January 2013. Undergone alternative stem cell … Continue reading How am I now?
My diagnosis
Who controls our access to information?
Disclaimer: READ THIS FIRST, PLEASE, BEFORE YOU CALL ME A CONSPIRACY THEORIST Last week, Youtube removed video (picture below) Andrew did and posted three years ago. It was an interview with a doctor and scientist about DCA (Dichloroacetate) and its complimentary use in treating cancer. I'm taking DCA myself. It's made in the EU and … Continue reading Who controls our access to information?
Finding the small joys
Two days ago, I had an early morning call with Andrew. He mentioned that a person who we both knew, (also had a brain tumour) passed away. When he told me, a single song popped up on my mind. When we finished the video call, I played the tune loud on the radio. As it … Continue reading Finding the small joys
The good and the bad about Botox
In 2017, I wrote about how regular botox injections improved some of my symptoms. Diminished the movement on my chin and opened up my right eye. Altogether, I had botox for four years every three months, so at least 14 applications. Last injection was the end of June, 2020. Following the VP shunt operation, my … Continue reading The good and the bad about Botox
International Brain Tumour Conference 2023
A few weeks ago, I attended a conference organised by the International Brain Tumor Alliance (IBTA). It took place in Vienna over the course of three days. I encountered a few familiar faces, including former colleague and established new connections and friendships. It was a great opportunity to see what everyone else is doing, globally, … Continue reading International Brain Tumour Conference 2023
Power of neuroplasticity
When I first started having problems with my right hand while brushing teeth I thought: gosh, I'll never be able to switch to my left hand. Now, more than three years later, I not only brush my teeth with my left hand, I learnt to write with it also. Something I thought was impossible. This … Continue reading Power of neuroplasticity
Healed, but not cured
For way over these 10 years, living with my brain tumour, I have encountered "the war rhetoric", the victim mentality, power of prayer, miracle treatments, ... The list just goes on. (I have expressed my views on the words like "battle", "war", "fight", defeat", "warrior", "loosing a battle" and so on HERE. People talk about … Continue reading Healed, but not cured
Brain tumour & Different experience between males and females
Having a brain tumour is tough for everyone. It's often classified as an "invisible illness", a medical condition that is not outwardly visible to others, even healthcare professionals. Nevertheless, it does have a lifetime consequences on one's quality of life. (Even if you are lucky enough to have the lesion removed by surgery and no … Continue reading Brain tumour & Different experience between males and females
What caused my cancer?
You might think this is a clickbait ... it is and it isn't. Let me explain. I was born in a former communist country, not long after the Velvet Revolution. My Mum always described a traumatic labour in a very grim hospital. Room filled with loud screams of other expecting mothers. She was alone (fathers … Continue reading What caused my cancer?
The problem with too much positivity
Just finished an interview with Mark Zuckerberg on the Joe Rogan Show from last Summer (better late than never...). He, among other topics, talked about the algorithms Facebook uses to favour certain posts over the others and it made me think. We all live in a world filled with pain, disease, unfairness, poverty, murders, war … Continue reading The problem with too much positivity
Anna's Brainstorm 