There has been a lot of of "exciting" news about the latest research, drugs ... However, if you start to dig deeper, you'll often find that these are things that were introduced years ago. Frequently, what brings them back into the spotlight are lawsuits (Optune) or rights acquired by a pharmaceutical company (Vorasidenib and Servier). … Continue reading Excitement around new treatments for brain tumours is understandable — BUT …
treatment
The latest advances in treatments, clinical trials … for brain tumours
My close friend, Andrew, who I interviewed, for example, HERE, has recently been invited to the British Neuro-Oncology Society (BNOS) conference. Seems like it was a very informative event. He was kind enough to answer a couple of questions I had and that I thought could be relevant for all brain tumour patients. Below is … Continue reading The latest advances in treatments, clinical trials … for brain tumours
International Brain Tumour Conference 2023
A few weeks ago, I attended a conference organised by the International Brain Tumor Alliance (IBTA). It took place in Vienna over the course of three days. I encountered a few familiar faces, including former colleague and established new connections and friendships. It was a great opportunity to see what everyone else is doing, globally, … Continue reading International Brain Tumour Conference 2023
Healed, but not cured
For way over these 10 years, living with my brain tumour, I have encountered "the war rhetoric", the victim mentality, power of prayer, miracle treatments, ... The list just goes on. (I have expressed my views on the words like "battle", "war", "fight", defeat", "warrior", "loosing a battle" and so on HERE. People talk about … Continue reading Healed, but not cured
The problem with too much positivity
Just finished an interview with Mark Zuckerberg on the Joe Rogan Show from last Summer (better late than never...). He, among other topics, talked about the algorithms Facebook uses to favour certain posts over the others and it made me think. We all live in a world filled with pain, disease, unfairness, poverty, murders, war … Continue reading The problem with too much positivity